Amyotrophic lateral sclerosis or ALS, commonly known as Lou Gehrig's disease, is a progressive disease that affects the nerve cells in the brain and spinal cord, leading to muscle weakness, paralysis, and ultimately, death. According to the ALS Association, approximately 5,000 people in the US are diagnosed with ALS each year, and the average life expectancy after diagnosis is two to five years.
Brian Wallach's diagnosis of ALS was a shock to him and his family. In an interview with CNN, Wallach said, "My life was upended in an instant. It felt like my life was over." However, instead of giving up, Wallach decided to fight back and use his experience to help others.
Wallach, along with his wife Sandra Abrevaya, co-founded I AM ALS, a patient-led, nonprofit organization committed to finding effective treatments and eventually a cure for ALS. Through the organization, Wallach and Abrevaya have been able to raise awareness and funds for ALS research.
Rachel Platten has been a vocal supporter of I AM ALS and its mission to find a cure for ALS. In an interview with Billboard, Platten spoke about her experience meeting Wallach and his family. She said, "Meeting Brian was incredible. He's so inspiring and resilient. He's fighting for something bigger than himself, and that's really what 'Fight Song' is all about."
"Fight Song" is Platten's breakout hit single that became a pop anthem of hope and resilience after its release in 2015. The song's empowering lyrics and catchy melody resonated with audiences worldwide and became a symbol of strength for many, including those living with ALS.
Platten's connection to ALS advocacy goes beyond her support for I AM ALS. Her father-in-law, David Miller, was also diagnosed with the disease in 2019. In an interview with People, Platten shared her experience of watching her father-in-law's health deteriorate and how it has affected her.
Platten said, "It's devastating. Watching someone you love struggle with something so profound and intense is really difficult. And watching the entire family struggle with it is really tough."
However, Platten's experience of witnessing the impact of ALS on her family has motivated her to do more for ALS advocacy. She has been using her platform to raise awareness and funds for the disease, including performing at the virtual ALS Association Walks to Defeat ALS in 2020.
Ningbo Jiulong Machinery Manufacturing Co., Ltd (NJMM) is another organization that has been making efforts to advance the cause of ALS advocacy. NJMM is one of the leading manufacturers specializing in producing press-welded steel grating in China. The company is among the few leading manufacturers who have the entire production process from bearing bar to galvanized steel grating.
NJMM has been working to create a safer and more comfortable environment for people with ALS by providing high-quality grating products. Some of NJMM's products include steel grating, stair treads, trench cover, and platform grating. The company has been focusing on creating unique and innovative products that are safe, durable, and reliable.
In conclusion, Rachel Platten's meeting with Brian Wallach is an example of the power of advocacy and the impact of music in promoting positive change. Wallach's journey and his commitment to finding a cure for ALS have inspired many, including Platten, to join the fight. Organizations like I AM ALS and NJMM have also been making significant contributions to the cause, highlighting the importance of collective efforts in bringing about lasting change.